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Posted By A Son-Rise Message Board Participant on November 28, 1999 at 15:07:58:
In Reply to: Re: Re: Re: Re: IVIG
posted byola on November 28, 1999 at 09:20:56:
Ola,
Insurance is an "interesting" thing. Will they cover IVIG/other tests was the question. It really depends on a number of factors. Each company covers different treatments/tests. You will need to call them and ask first unless you have the money to pay. I find the single most important factor in getting insurance to pay is having the "correct" diagnotic codes. You see, when I first started out, my son was autistic. Insurance did not pay for neurological problems I was told. I thought, "That makes sense. He can hardly talk, and they won't cover speech therapy." Therefore, now my son simply has a "metabolic disorder" or "encephalopathy" (I'm probably spelling that wrong). Amazing, now they pay for almost everything. It is important to ask your doctor how they are coding the bill and what the diagnoses is. If it is autism by itself, I would guess they won't pay. In any case, from what I have been told by other parents that have done this and my insurance company is, yes most are paying for this.
Jen & Ola,
I don't know enough to say much more than has been covered. Jen: I am assuming you are getting your MBP (myelin basic protein antibody) test done from Dr. Singh? I don't know of anyone else that does it. If it is someone else, please let me know. You mention that from running the tests you can determine if they are good candidates or not. I don't know if that is entirely true. While we are running an immune system panel test as well, I don't know if anyone has proven that one is a better candidate than another. Now of course in simple terms, it would make perfect sense to say that if your child had immune abnormalities, IVIG may help him. However, is your child a "bad" candidate if the tests are unremarkable? I don't know that I would be willing to say that at this point yet. Could a chronic infection be going on without the immune system having a testable problem? I don't know. Dr. Gupta did (I think about 200 kids/not sure about the number) a study and the results should be out soon. It will be very interesting to see the results of who benifitted the most/least. After the results are out, the answer to that question may be plain as day. Lets wait and see though for certain.
Jen, You are first on the list to meet me and my wife in D.C. on the 8th! Looking forward to meeting you. Bram
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