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Posted By ola on October 16, 2000 at 09:58:24:
In Reply to: Re: GFCF help
posted by Jeanie on October 16, 2000 at 05:07:07:
: Dear Jamie. I can't help with the cheese but can give you a brief overview of our dietary measurs.We took Joo off gluten first for a couple of months then off cassein too.We noticed a big improvement off gluten[more settled calmer sleeping better] and some improvement on reducing cassein ftrom large amounts but not on eradicating it completely.We then put him back on everything and sent a urine test to the University of Sunderlan UK[who have a prototype research urine test developped].I think somewhere in Norway also has one but not USA yet although I have heard rumours that Johnson and Johnson are looking into developing one.This test seemed to indicate that Jo was sensitive to Gluten but not especially to cassein.We also find that food colourings/chocolate etc also seem to upset him.Interstingly Paul Whiteley at Sunderland seemed to suggest that the more marked a childs challenges the more likely they were to test positive for gluten and cassein sensitivities.We find it difficult to totally eradicate gluten but try to keep his intake as low as we can .We are able to reduce cassein intake but do not try to eradicate it as that seems to have no clear benefit and the urine test seemed to be in support of our experiences.Intersetingly with removal of gluten Jo seems less sensitive to other things such as colourings.There has been some suggestion in reserach circles that gluten mewtabolism could be faulty in some individuals making a byproduct which is damaging to the gut and allowing other chemicals to leak through into the bloodstream.We find that it takes a couple of months to see the full effect of gluten removal but if he has some[eg a normal sandwich] it takes 2-4 hours then we see a real tendancy to getting very upset over things such as getting out of or into the car or not gretting his own way....with tearful disagreements occuring over unimportant things.We also find that 2-3 hours after chocolate he gets very very very excited and bounces round the furniture and tips things on the floor.You may notice a couple of temperamental weeks on removing gluten or cassein as a child gets used to being without it.....not so disimilar to the way a smoker behaves on quitting cigarettes.We find the degree to which we can stick to the diet is limited by food preference....Jo will barely eat any protein without a crumb coating or gravy so we have decided he needs some protein so we will have to compromise and allow fish fingers/chicken nuggets etc.We aim for the best we can manage....it has helped a lot though.Good luck.Love Jeanie.
just a quick note-you can also have home made chicken fingers and fish sticks by putting gluten free batter on them yourself. my daughter also loves fried foods and i stopped getting the store bought ones and now she eats chiken fingers with bean flour or gluten free batter mix from miss robens. i never thought she would, but when she saw she had no choice, she tried it and she liked it! there is a test here in the US that measures gluten and casein peptides in the urine which is different from an allergy or food sensitivity test in that it shows whether or not these proteins are being digested or remain in the system. hope this helps, ola