Re: Rett-syndrome

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Posted By ---> A Son-Rise Message Board Participant on May 11, 2000 at 17:58:27:

In Reply to: Rett-syndrome posted bySilvia on May 11, 2000 at 05:20:57:

I can't help you directly with this but I do know of one Son-Rise child who was suspected to have Rett-syndrome. She did make some progress but very slowly. I met her mother, Lynn McWilliam, at the Advanced Son-Rise Training Program I attended several years ago. At the time, she hadn't been firmly diagnosed yet but did have many of the characteristics. I did a web search and found alot of info on it so you could probably do the same. I've lost contact with this mom (at the time she was living in Ghana, Africa but moved often since her husband's job was to save rain forests so she probably isn't there anymore) but you may be able to get in touch with her by asking the Son-Rise staff if they have her current contact info.
Gaylen

Follow Ups

• Re: Re: Rett-syndrome Silvia 04:42:51 05/12/00 (3)
  • Re: Re: Re: Rett-syndrome ola 16:45:43 05/12/00 (2)
    • Re: Re: Re: Re: Rett-syndrome Silvia 05:12:45 05/14/00 (1)
      • Re: Re: Re: Re: Re: Rett-syndrome ola 11:56:39 05/14/00 (0)

---> Name:
Subject: Re: Re: Rett-syndrome

Comments:: I can't help you directly with this but I do know of one Son-Rise child who was suspected to have Rett-syndrome. She did make some progress but very slowly. I met her mother, Lynn McWilliam, at the Advanced Son-Rise Training Program I attended several years ago. At the time, she hadn't been firmly diagnosed yet but did have many of the characteristics. I did a web search and found alot of info on it so you could probably do the same. I've lost contact with this mom (at the time she was living in Ghana, Africa but moved often since her husband's job was to save rain forests so she probably isn't there anymore) but you may be able to get in touch with her by asking the Son-Rise staff if they have her current contact info. : Gaylen