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Posted By A Son-Rise Message Board Participant on May 11, 2000 at 05:20:57:
I would like to know if any of you has any experience with a child with Rett-syndrome, who is in a Son-Rise program. The child in the program I'm volunteering in, -could possibly- have Rett-syndrome. I personally don't think so, because of the progress she has made in the last couple of months (she is three years old) I haven't heared of any child with Rett-syndrome participating in a Son-Rise program yet, but I'm sure that a child could only benefit from that 'cause I know that stimilation is very important for these children (as for any child) Does anyone of you has any experience with this? What kind of symptoms does the child have? How did you find out it was Rett-syndrome?