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"The Son-Rise Program"
Reprinted from Autism File, England
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The Son-Rise Program
The
Son-Rise Program, which forms the basis of the
work carried out at the Option Institute in Sheffield,
Massachusetts, was developed by Barry Neil Kaufman
and Samahria Lyte Kaufman following the birth of their
son Raun. A year after his birth Raun began to display
increased audio insensitivity and aloofness. In the
following months a happy, engaging child became more
and more detached from his parents preferring solitary
play to their physical contact.
Like many parents the Kaufmans sought professional advice but were alarmed by the pessimistic predictions of the professionals and their reluctance to intervene to help their son there and then. 'Come back in a year,' they said, and they would have another look at him. We were disappointed, even angry. We wanted help, not an abstract diagnosis'.
Instead of despondency, however, the Kaufmans resolved to defy the predictions of the professionals. Armed with their own philosophical approach they set about developing a programme for Raun. The Kaufmans saw the 'isms' or behaviour patterns in an entirely different way: 'The child does not know how to deal successfully with his surroundings, and well-intentioned family members and friends do not know how to cope with this little person's bizarre and enigmatic behaviours. Therefore after a few years of being functionally autistic, the child intermixes a good deal of frustration, anger, and pain with his fantastic array of special behaviour patterns in response to anxious and even disapproving people around him. The child's display of discomfort, once interpreted as a causal factor of autism, represents the possible explosive and painful results of two worlds colliding.' Their approach was to embrace the 'isms' by:
- Showing an attitude of approval and acceptance in everything they did with their son.
- Offering him a motivational/therapeutic experience which would entice him out of his isolation.
- Developing a teaching programme that simplified every activity and every event, breaking them down into digestible parts.
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Today, after a vast expenditure of energy and time, Raun Kaufman displays 'no traces of his former condition' and the Option Process has become the basis of a programme now being used with children with a range of conditions including cerebral palsy, epilepsy, Rett syndrome, tuberous sclerosis, autism, pervasive developmental delay, Down's syndrome, anterior horn cell disease and attention deficit disorder. Hundreds of families have taken their children to the Option Institute seeking to learn something of the Kaufmans' approach.
Tributes from parents adorn their literature and the sleeves of Barry Neil Kaufman's books. Despite their successes the Institute, which is a charitable organisation, currently receives no federal funding, relying on donations to cover the shortfall between programme income and its operation costs.
Nevertheless it still offers a choice of programmes to parents, as Samahria Lyte Kaufman, co-founder of the Option Institute and Executive Director of the Son-Rise Program explains:
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'We work with two families a week in our program where
the parents bring their children.
This program requires 12-15 staff members who work
with the children for 40 hours during the week and
38 hours are spent teaching the parents how to guide
their children.
The Institute views parents as the most powerful,
dedicated and loving resource in a child's world.
'We also have another program where parents can come
without their children. This usually attracts about
50 participants. We hold this workshop four times
per year. So we are able to reach another 200 parents
in this way.
'It is the emphasis on the role of parents alongside
the philosophy of acceptance that distinguishes The
Son-Rise Program from those administered by professionals.
Parents run the program recruiting volunteers and
deciding just how intense the effort will be.'
As Samahria Lyte Kaufman explains: 'Each family decides
how the Son-Rise Program will work best for them.
We train the parents on how to recruit volunteers
so they can run a full-time program if they wish.
We never suggest that a family "should" do the program
in a certain way. Even a few hours a day doing this
program can be incredibly effective. The schools cannot
provide the intensive one-on-one interaction that
a parent or Son-Rise volunteer can. Parents can feel
proud of any time that they give to their child. Each
individual program is built around the child's interests.
It is not a question of imitating the actions of the
autistic child but of joining in with them so that
slowly but surely the child begins to trust the adult
and leads him or her into their world. In this sense
each program is truly child centered, building on
the child's own interests whatever they might be.
Volunteers and parents repeatedly convey to us the
joy they feel in working with a child with special
needs. These programs are not just helping the child
but the adults involved are deeply touched by the
experience.'
Additional Articles:
"The Importance of Being Happy"
Reprinted from In Context
"Parenting by Intention"
Reprinted from Mothering Magazine, USA
"Assistance For Autistic Children"
Text from 9 On Your Kids Side Video
Originally aired 9/24/02 on WCPO TV9
Complete List of Autism Articles
The
Son-Rise Program®
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