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Autism is incurable, right? People say it's a lifelong
condition. An irreversible brain disorder. A tragedy.
According to many, anyone who says otherwise is promoting
"false hope." There's just one problem with this point
of view: it's not true. Autism does not have to be
a life sentence. And there is no such thing as "false
hope."
How do I know? My entire life is the product of what many call "false hope." At 18 months old, I was diagnosed with autism. In fact, my case was considered severe, with no speech and a tested I.Q. of less than 30. I would spend my days endlessly engaged in repetitive behaviors such as spinning plates, rocking, and flapping my hands in front of my face. I never looked at others nor did I give the slightest response to the calls and requests of the people around me. I was "in my own world."
As I'm sure you can imagine, my parents were told many things about what my future would hold. No change was to be expected in my development. I would never speak, never have friends, never go to school, never learn to communicate with others in any meaningful way. The professionals recommended eventual institutionalization.
My parents, however, decided to make a complete departure
from traditional methods of "treatment." They designed
and implemented an innovative and groundbreaking program
that was both home-based and child-centered: The
Son-Rise Program®. |
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After my recovery, my father, Barry Neil Kaufman,
wrote a book relating our story entitled Son-Rise:
The Miracle Continues (later the subject
of an NBC television movie). Then, in 1983, my parents
founded what is now known as The Autism Treatment
Center of America™, a division of The Option
Institute, a non-profit, charitable organization,
located in Sheffield, Massachusetts. Our center is
dedicated to helping parents and professionals caring
for children with autism, PDD, autism spectrum disorders,
and other related developmental challenges. We teach
a system of treatment and education designed to help
families and caregivers enable their children to dramatically
improve in all areas of learning, development, communication,
and skill acquisition. Having worked with thousands
of people worldwide, we continue to achieve results
that have forever changed the face of autism and other
developmental disorders.
Currently, we offer an introductory program called
The Son-Rise Program® Start-Up,
which provides parents and professionals with all
of the tools they need to design, implement, and maintain
a child-centered Son-Rise Program®.
This training course is offered several times a year
on our campus in Massachusetts, and we will also be
sending a team of teachers to London from 13 to 17
January 2002, to teach the full Son-Rise
Program® Start-Up at that time.
The foundation of the program rests upon this idea: the children show us the way in, and then we show them the way out. In this way, we establish a mutual connection and relationship, which is the platform for all education and growth. Then, we can teach our children everything we want them to learn with exponentially greater success, speed, and ease.
One specific technique derived from this principle is joining. This means that when a child is doing a particular repetitive, exclusive behavior (i.e. stacking blocks, flapping hands, etc.), we do not try to stop the child from doing this. On the contrary, we do this activity with him! We find that children consistently look at and interact more with people when they are sincerely joined in their repetitive activities. This unlocks the door to the child's world.
Another key technique is to facilitate skill acquisition by capitalizing on each child's own motivation. Since, for these children, traditional learning modalities will rarely be appealing, we customize the presentation of curriculum to match the child's highest areas of motivation. This way, we use the particular skills and interests our child already has to maximize learning globally.
I could discuss other principles and strategies, but, instead, I will end where I began: with one all-important note. People have accused us of advocating "false hope," asserting that we cannot guarantee that all children will turn out like me. This is true. No one can guarantee that. But does this mean that parents should be discouraged from hoping for their children? Does that mean that all of these children should be given life sentences? Who decided that a life sentence was better than an open door and an outstretched hand?
The very idea of "false hope" means that there are times when hoping can be bad, wrong, or inappropriate. Because I have seen over and over again, in my life and in the lives of countless others, that hoping only helps and never hurts, I do not believe that hope can ever be "false." When I was diagnosed with severe autism, my parents decided to see possibilities where others saw none, and it was this perspective that enabled my complete recovery. Yes, it is true that we cannot know in advance what any given child will accomplish. But we must not decide in advance all of the things a child will never achieve. You should never have to apologize for giving your child a chance. Hope leads to action, and without action, none of these children can be helped.
For more information on The
Son-Rise Program®, please call 1-877-SONRISE
Additional Articles:
"The Importance of Being Happy"
Reprinted from In Context
"Parenting by Intention"
Reprinted from Mothering Magazine, USA
"Assistance For Autistic Children"
Text from 9 On Your Kids Side Video
Originally aired 9/24/02 on WCPO TV9
Complete List of Autism Articles
The
Son-Rise Program®
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