Voice
Your Opinion
Anyone impacted by an Autism Spectrum
Disorder (ASD) can become part of IAN's
online community to stay informed about autism
research, provide feedback, and make your
voices heard. We encourage you to be a
part of this and help other parents learn about
The Son-Rise Program.
Dear Dedicated Parents and Supportive
Professionals,
THANK YOU to the hundreds of you who
were inspired into action as a result of the recent
episode of 60 Minutes -- Diagnosis: Autism
with Leslie Stahl. Most of you did not agree with
the way the report was presented, the way our children
were portrayed, that ABA was presented as the only
alternative and that The Son-Rise Program®
was not mentioned.
You are all truly amazing. The only
reason I was able to recover from autism and live
the life I’ve lived is because my parents
did what you did: they stood up for what they believed
and made a real difference.
Many of you went to the message boards,
wrote us e-mails, sent us letters and phoned in.
Many of you acted as genuine forces of nature and
wrote to other families detailing how to contact
all the major media and what to say. I want to particularly
thank and take my hat off to Nicole Muench Seidel
and Gib Papazian for their enthusiastic, eloquent
and proactive stance in making a difference. Their
letters follow below.
We invite you to voice your opinion
directly to 60 Minutes and any other media you choose.
Whatever you send to the media, please
be sure to send to Oprah (www.oprah.com),
The Autism Society of America (media@autism-society.org),
and Autism Speaks (contactus@autismspeaks.org).
If you missed the 60 Minutes episode,
you can read the report and watch the video by clicking
on this link: http://www.cbsnews.com/stories/2007/02/15/60minutes/main2483414.shtml#ccmm
With gratitude and excitement,
Raun K. Kaufman
CEO, The Autism Treatment Center of
America

Hello all,
I just received the email below from AutismLink. Larry
King Live http://www.cnn.com/CNN/Programs/larry.king.live/
will be doing a show tomorrow [Wednesday] about Autism:
"Bill Cosby and Toni Braxton speak out on the
epidemic affecting 1 in 150 children. As autism cases
soar, what's behind the rise?" I'm not that familiar
with the show since we don't have cable. Do people
call in or just email? Anyway, this is a golden opportunity
and we need Son-Rise people to contact the show.
Here are the two contacts that I've found:
Question for guests: http://www.cnn.com/feedback/forms/form5.lkl.html/
An example of a question to pose would be: "When
innumerable children have completely recovered from
Autism and still others surge well beyond their prognosis,
using Autism Treatment Center of America's Son-Rise
Program®, why isn't the media and the autism community,
in general, talking about the amazing, life affirming
Son-Rise program?"
Comments: http://www.cnn.com/feedback/forms/form5.html?12
If anybody knows of a phone number for Larry King
Live, please let the rest of us know. It would be
great if a Son-Rise family could call in and talk
about their success! It would be fantastic if Raun,
could call in and speak about Son-Rise!!!
We need to do this for all those families who are
struggling and have no idea that Son-Rise is an option!
Thank you all for your help in this endeavor!!!
Peace be with you!---Nicole
The episode is airing tonight on
CNN at 9pm EST. If you can call in with a question
or comment, email in your questions before the show,
or post a comment on the website after the show, using
your experience and knowlege of Son-Rise, we would
really appreciate it. It may just work!
Larry King Live CNN/Cable News Network
Washington, District Of Columbia County; DMA: Washington,
DC (008)
Mail: [Same as street address]
Phone: (202) 898-7690
Fax: (202) 898-7686
Street: 820 1st St NE, Washington,
DC 20002-4243
Home Page: www.cnn.com/CNN/Programs/larry.king.live
Email: larry.king.live@turner.com
Tracy Baisden, Publicist
Hello everyone,
Though our contact with you may
be sporadic, we often think of all of the people who
have touched our lives in many ways. Frank and I have
come to find that our purpose and priority in life
is to help Veronika pass through her journey into
Autism and reach her full potential (be that full
recovery or not), but to also, help the other families
impacted by Autism. A few weeks ago, the CDC announced
that 1 in every 150 children has Autism. The media
seemed stunned by this, yet we were not. We have seen
many families in our community struggling with this
condition and the lack of support. What did astonish
us was the recent news reports of electric shock being
used as "treatment" for children with Autism.
We naively assumed that the barbaric and ineffective
method of shocking children was a horror from Autism's
distant past. We are dismayed by the way the media
is handling this issue, so I am asking everyone reading
this (regardless of what state or country your in)
to please take a few minutes to do something that
costs nothing, yet will help Autism families all over
the world.
A few years back, PA Gov. Rendell attended a fundraiser
for the Autism Treatment Center of America's Son-Rise
Program® hosted by the Westphal
family. Kyle Westphal completely recovered from Autism
using Son-Rise®: http://www.kylestreehouse.org/video1.htm
and was featured in Discovery Channel and Fox News
segments. Recently, CBS's "60 Minutes" aired
a segment on Autism after the CDC announced the 1/150
statistic. We expected a news organization of the
caliber of "60 Minutes" to have presented
a broad based segment on various treatments that are
helping children. Instead, they focused on one treatment
approach that has been used for many decades, without
a significant improvement to the child's life, much
less recovery.
If Gov. Rendell can take time out of his busy schedule
to support an Autism treatment [Son-Rise®] that
has helped children all around the world, why can't
the media take notice? When Frank and I went to the
Autism Treatment Center of America, we met parents/grandparents/teachers/etc.
from 23 different states and 10 different countries.
After years of other therapies that left us feeling
despondent, Veronika has changed so much in the last
6 months since we started Son-Rise (in the areas of
verbal communication [spontaneous sentences instead
of one word], eye contact [up to 30 seconds uninterrupted],
demeanor, etc.) Veronika, who battled us nightly not
falling asleep until between 2-4:00 in the morning,
now goes to sleep consistently at a reasonable hour,
and get this, she decides she is sleepy and wants
to go to bed. We don't have to tell her to go to bed!
That's amazing!!! She's happier than I've seen her
in years, and so are Frank and I. Before Son-Rise,
just to get a dental check-up, Veronika would typically
have to be restrained in a mesh wrap thing (like a
cocoon) and have cartoons playing in front of her
face...recently she had a dental check-up without
restraint or cartoons, and was pleasant and cooperative...the
dental hygienist commented that Veronika was "like
a whole different girl", the hygienist even got
a spontaneous hug from Veronika. This has had a phenomenal
impact on our family's quality of life!
So, I am asking everyone reading this to please take
a few minutes out of your day to write a quick note
requesting that the shows that are listed below do
a story on Son-Rise® and the Autism Treatment
Center of America. Even if you never watch one of
the shows listed or TV at all, please contact them
any way. I have provided the contact info. Size of
the email doesn't matter...the shear volume of emails
[if we all take a little time out of our day to do
this] should make a huge impact! One more thing, in
my letter to "60 Minutes" while I alluded
to the boy being trained to touch is ear, head, etc.
gave no eye contact, I forgot to mention that as they
reported using eye tracking technology indicates that
children with Autism naturally look at people's mouths
instead of eyes, yet this boy, whom Dr. Sally Rogers
had taken the "in your face", "forcing
interaction" approach for nearly a year, now
didn't look anywhere near her face...at one point
choosing to look at a wall...and not the wall behind
Dr. Rogers, but 90 degrees to the side of her...from
a human interaction stand point, in my opinion, this
kid was staging a full scale revolt, and no one in
the room including Lesley Stahl seemed to notice.
If you are not sure what to say, here is a short letter
template from which to work:
| Please
do a story on Autism Treatment Center of America's
Son-Rise Program®. The Son-Rise Program®
has helped innumerable children completely recover
from Autism and still others surge well beyond
their prognosis. Please contact Raun Kaufman,
who completely recovered from Autism and is now
CEO of the Autism Treatment Center of America
(413) 229-2100 and Email at sonrise@option.org
in Sheffield, Massachusetts. Raun Kaufman is also
scheduled to be one of the speakers at both the
Autism One Conference http://www.autismone.org/homepage.cfm
in Chicago, IL and the Edge of Autism Symposium:
http://www.edgeofautism.com/ in Lancaster, PA.
|
Please forward this to anybody else that you think
would be willing to take a few minutes to help children
with Autism all over the world. The media has a notoriously
short attention span, so we hope to keep emails coming
to these shows into April -- "Autism Awareness
Month".
One more thing, I called "60 Minutes" and
I found out that to get your email to get noticed,
you should type in the subject line:
"Stahl Team (Autism)"
So, be sure to include that in your subject line of
your email to "60 Minutes".
Here is all the contact info that I
have gathered (feel free to add to it):
EMAIL: 60m@cbsnews.com
Remember, email subject line: Stahl Team (Autism)
PHONE: (212) 975-3247 If you call,
it will take between 3-4 minutes by the time
you leave a voice message, wait for the maximum message
length cue and select delivery preference; I picked
"Urgent".
ADDRESS:
60 Minutes
524 West 57th St.
New York, NY 10019
Here are some other CBS News email addresses; you
would make a different subject line of your choosing:
CBS Evening News: evening@cbsnews.com
{I wonder if Couric Team (Autism) might be a good
subject line.
I had already sent mine by the time I talked to CBS,
so I sent it a second time with that title to hedge
my bets.}
Couric & Co: couricandco@cbs.com
CBS Evening News, Saturday and Sunday editions:
weekend@cbsnews.com
CBS Sunday Morning sundays@cbsnews.com
Here is the contact info for CBS's competitors:
NBC Nightly News with Brian Williams:
Nightly@NBC.com
Dateline NBC (their version of a
60 Minutes show): Dateline@NBC.com
NBC Today Show: Today@NBC.com
Weekend Today: WT@nbc.com
MSNBC TV: viewerservices@msnbc.com
ABC Prime Time: abc.news.magazines@abc.com
20/20: 2020@abc.com (Note: both 20/20
and Prime Time are their version of a 60 Minutes shows)
ABC Nightline: niteline@abc.com
World News Tonight: http://abc.go.com/site/contactus.html?cat=World%20News%20Tonight
ABC Weekend News feedback page: http://abc.go.com/site/contactus.html?cat=Weekend%20News
CNN: http://www.cnn.com/feedback/forms/form11b.html?1
http://www.cnn.com/exchange/ireports/topics/forms/breaking.news.html
FOX News:
TO CALL FOX NEWS CHANNEL: 1-888-369-4762
TO E-MAIL GENERAL COMMENTS: Comments@foxnews.com
The Oprah Winfrey Show:
Note: This show is recorded in Chicago and Autism
One http://www.autismone.org/homepage.cfm
has announced its annual conference will be in Chicago
& Raun Kaufman is one of the speakers.
Show ideas http://www.oprah.com/email/reach/email_showideas.jhtml
Email http://www.oprah.com/email/reach/email_reach_fromu.jhtml
O Magazine: http://www.oprah.com/omagazine/omag_wehear.jhtml
Dr. Phil Show: http://drphil.com/plugger/respond/?plugID=9163
Thank you all so much for your help in this endeavor!!!
Peace be with you!---Nicole, Frank and Veronika
Gentlemen,
As a long-time viewer of your show, I would normally
have unqualified positive comments regarding your
investigative reporting. However, in this case I am
horrified, disappointed and shocked at the irresponsible
journalism displayed in your recent autism presentation.
My son is autistic. While the so-called "ABA"
approach was effective for a short period of time
- mostly to reinforce rudimentary developmental tasks
such as potty-training - it did absolutely nothing
to encourage cogent communication with another human
being.
Zero.
The truth about ABA is as follows: The "special
education" system is funding based. Educators
are required to establish quantifiable goals to be
met, using percentages, in order to establish some
sort of measuring stick on the progress of a child.
These goals and the baseline are arrived at during
yearly meetings called "IEP's" - aka: Individualized
Education Plan.
Thus, if little Johnny can point to his nose on command
70% of the time, the goal has been met and everyone
can congratulate themselves as having achieved progress.
This paradigm is a complete canard. ABA simply bribes
children to behave as instructed and nothing more.
The child is not inspired to interact in any meaningful
way; they are simply being trained as one would an
animal to perform a trick for onlookers.
ABA treats children as objects.
My son was trained - through bribery with candy -
to "appropriately respond" to such questions
as "how are you today?" with: "I am
fine, how are you?"
He had no concept of what "fine" meant in
any meaningful sense. If the "trainer" were
to say "what's up?" to my son, the response
would have been silence.
Why?
Because that is not on the script he has been taught
to memorize. The ABA approach does not generalize
into the real world. It is simply a method by which
schools can continue to receive funds from the state.
Now, onto the point: There *is* a way to get through
to these children, but before you can inspire them
to seek interaction in our world, it is crucial to
first reach out into their world.
Autism is a world unto itself.
We have been following the Sonrise Program (Autism
Treatment Center of America) for quite some time.
My son, despite only living with us half the time
- his mother refuses to cooperate - has made vast
strides.
His perseverations and echolalia have gone from nearly
constant to rare occurrences. Eye contact has gone
from zero to almost 100%. That is a meaningful percentage.
Where once he avoided contact, preferring to hide
in his little world of videos and repetitive behaviors,
my son is with us - constantly seeking interaction.
Playing appropriately, calm, and in truth, often more
focused than his twin sister, who is neuro-typical.
We have a staff of volunteers who work with him nearly
every waking moment, obtaining feedback from his step-mother
and myself on a continuous basis, as we lead our child
through the transition from the confining world of
autism to the reality we all share.
It takes work. Lots of it. Time, effort, training,
commitment and most of all, parental BELIEF that autism
is curable. My niece was clearly diagnosed with autism
by a team of experts. She was removed from three different
nursery schools for disruptive and frankly impossible
behavior.
Just seven months of full-time Sonrise was all it
took. This little girl has - in my view - absolutely
no symptoms of her former condition and is fully mainstreamed.
Sonrise works powerfully and permanently.
Do we pursue other strategies? Of course! My son is
wheat, gluten, casein and dairy free. He is also under
the supervision of a famous physician who has done
a spectacular job of resolving my son's allergies
- which exacerbate autistic symptoms.
However, the key has been Sonrise.
I invite you to bring your cameras into my home. There
is no excuse for a television show with such worldwide
penetration to act as an advocate for an ineffective
treatment.
That is not responsible journalism gentlemen.
Gib Papazian
Hillsborough, CA
|